Tag: actuallyautistic

so like

some days i have doubts about whether i Really Am Autistic, since i never did get formally diagnosed or anything, and i’m So High Functioning (eyeroll) and all that crap.

and other days are like today, where after EIGHTEEN YEARS, first of living in and then regularly visiting the house my parents bought when I was fifteen

after EIGHTEEN YEARS

i finally figured out how you’re supposed to close the door to the shower stall.

because it is a sliding glass door, BUT IT DOES NOT WORK THE WAY SLIDING GLASS DOORS ARE SUPPOSED TO WORK.*

these  days are not doubting days. XD

Researcher looking to hear from autistic voices:

autisticadvocacy:

Hello,
My name is Laura Lewis and I am a nurse and postdoctoral researcher at the University of Vermont.  I am looking for individuals who may be willing to participate in a research study about barriers to being formally diagnosed with Autism Spectrum Disorder (ASD) as an adult. The study is entitled, “Barriers to formal diagnosis of Autism Spectrum Disorder in adults.” I am looking for individuals who have been self-diagnosed or formally diagnosed with an ASD when you were 18 years old or older. Participation is entirely online and includes completing a survey about the types of barriers you faced in getting or formal diagnosis if you are diagnosed, or the reasons that you are not formally diagnosed if you are self-diagnosed. It will likely take about 30 minutes to complete. You must be 18 years or older to participate.

To find out more about this study or to participate, please see the study website: https://survey.uvm.edu/index.php/926548/lang-en.

A friend of mine asked me whether the Global Autism Project was “pernicious or benign” and I haven’t actually heard of it. Are they a worthwhile enterprise?

tropesarenotbad:

autisticadvocacy:

I’m sorry asker, I’ve never heard of them.

Upon googling:

– Puzzle pieces in logo
– Staff members advocate ABA therapy/one staff member is straight up Bobby Newman, who wrote a book on ABA
– Does not appear that a single member of the staff is autistic
– They seem to work with local centres to destigmatize autism
– They advocate for early intervention

I think that while they seem half decent, the ABA therapy is a huge deal breaker for me.

Thanks! I’ll pass that along.

littlepinkrobot:

autistic mako mori is so important

autistic mako mori learning to use swords because guns are sensory nightmares

autistic mako mori with a special interest in jaegers and lady danger in particular and taking control of the entire project because shes become the Expert

autistic mako mori getting stim toys from stacker when she’s particularly stressed

autistic mako mori stimming by fighting in the kwoon (it clears her head)

autistic mako mori with strength in gross motor skills and struggles in fine motor skills, so she has speaking and typing software for her work as an engineer & stuff

autistic mako mori doing 51 drops on the simulator and getting them all perfect because she’s “one of our brightest”

autistic mako mori speaking 3+ languages and talking with other neurodivergent rangers & workers in their first languages so they get the resources they need

autistic mako mori being a huge advocate and fighting against the bureaucracy of the PPDC and trying to get more resources for physically, mentally, & developmentally disabled workers & especially rangers

autistic mako mori heading the fight for better care for veterans of the Kaiju War, demanding better treatment for people suffering from PTSD and complete coverage for any and all who served, in whatever capacity

autistic mako mori getting overwhelmed by the LOUD HUGE shatterdome and curling up in her room with a soft toy and a weighted blanket and stimming until its a little easier

autistic mako mori being gifted with noise canceling headphones by the kaidanovskys. sasha gives her a squeeze on the shoulder & a wink, and aleksis gives her a huge bear hug

autistic mako mori getting to pet aleksis’ soft beard because sensory seeking, good soft things can be hard to find in the cities near the breach uwu

autistic mako mori going non-verbal and signing with the wei brothers, because 1 of them is deaf and teaches her when she and stacker are in hong kong the first time

autistic mako mori

please help me

autistic-ash-von-slasher:

dear other autistic parents of autistic children, can you please give advice on what to do when you run out of spoons but you still gotta do the parent thing bc you’re like, the parent, even though you desperately want to run and hide?

This got kinda long. 😛

if the kid is older i’d say that it may be helpful to let them see what’s going on with you?  especially since they are also autistic and will have to figure out how to manage being overextended themselves.  you’d have to be careful not to phrase it in a way that makes the kid think that it’s their fault, but i think it would be really valuable for a kid to hear you say that you’re overstimulated/ overextended/ etc. and talk about how you are going to try dealing with it.  Try to remember that things like “no, we can’t go to the park right now because I’m overstimulated and it would be too painful” are COMPLETELY REASONABLE, and that seeing you set those kind of boundaries will reinforce for the kid that those are acceptable boundaries for them to have, too.  If the kid can be left unsupervised for a little while, telling them that you’re taking a short sensory break could also be a good thing to do.  (they can interrupt you in an emergency, but otherwise they are to occupy themselves quietly for [length of time] while you rest.)  And if they can’t… things like putting on an episode of Sesame Street or something so that the kid isn’t demanding your undivided attention for a couple minutes is NOT a cop-out.  Especially if you are a full-time parent, there are probably going to be days now and then that are nothing BUT Sesame Street (or whatever).  This is FINE.  You have to take care of yourself so you can take care of them.  You don’t have to provide stimulating and educational experiences every single second. 😛

For infants… ear plugs were a godsend for me.  And similarly to the Sesame Street thing above:  sometimes you have to put the kid down in the crib (or playpen or safe enclosed space of your choice) and just walk away for a little while.  They might wail, but it is FAR better that they wail for a little while than that you get to a point of melting down, where you CAN’T take care of them safely.

Not knowing more about your situation that’s about as much as I’ve got.  I hope it helps, and please feel free to bother me in my askbox if you want to chat.

so does anyone else have what i call for lack of a better term “sense echoes”?  like, you touch something unusual and can feel it on your fingers for hours, even after touching other things/washing your hands/etc.  or you hear something and it echoes around your head and you have to work really hard to shut it up.  and does anyone have suggestions for how to damp that off?