“I’m fine, it’s just–”
“If I really needed to, I could pretend to be okay, so obviously I’m just being melodramatic and selfish by not pretending to be okay, so you should feel free to ignore me.”
*ponders* A less mean-to-self translation might also be, “Nothing is actually about to fall apart, I’m just miserable, in emotional pain, and it hurts.”
Sometimes I feel like NT/mentally healthy people don’t realize that you can be in emotional agony and still going to survive the week just fine. It doesn’t mean things are actually “okay”, but you’re … fine. You can deal. Nobody needs to start panicking or anything.
A thought, anyway. >.>
Yeah. That too.
Also “I am deeply uncomfortable with Receiving Comfort” and “If you are upset then I will have to pretend to be okay so that I can make you be not-upset so please do not worry no really.” And probably some other stuff.
Hahahahah yes fair there is also the “I am not really okay but I am also one hundred fucking percent not up to dealing with YOUR FEELINGS about me not being okay so please stop.”
Lately I’ve taken to answering “How are you” or “How’s it going” with “Well, I’m upright and moving” or “Hasn’t stopped yet.” It makes people just uncomfortable to not ask questions but it’s also joking enough that they don’t feel like they have to ask if there’s anything they can do.
Yeah often my answer when I’m badly off is “well I’m not dead yet!” in a very cheerful tone of voice. >.>
Tag: autismproblems
what do other people have against subtitles? like bitch,.. my ears are Not Friends with my brain, let me have my captions
Something that may come as surprising to folks whose needs and comfort levels are already catered to by the world around them, is that “coping” is exhausting.
There are a great many people who are perfectly capable of adjusting to certain situations, be it a matter of social interaction, or physical disability, medical conditions, or whatever the case may be. Through trial and error we have discovered tricks and methods that allow us to function in a society that wasn’t created with us in mind, and we’re very good at making it look like we’re getting along just fine.
But it’s tiring. Always, constantly having to be vigilant and on-guard while everyone around us takes everything in stride, and then no one understands why, at the end of the day, we shut down. Because we were able to “get by” throughout the day, suddenly our unwillingness or inability to cope is no longer valid.
It’s like carrying a 20 pound weight all fucking day long. Just because you can doesn’t mean you don’t need or deserve a break. And then when you finally put the weight down, everyone around you scolds you and chastises you, accuses you of being lazy, insists that you’re just “faking because it’s convenient.”
This is why it’s so fucking unbearable living in a home where everyone chooses to disregard your limits and your comfort levels. Family members will say, “I’m not going to cater to your needs, because the ~real world~ won’t cater to you and you need to get used to that.”
Consider: People who struggle and cope through everyday life are already painfully aware that the “real world” doesn’t give a fuck about us. This is why we develop coping strategies that allow us to function. This is why when we finally come home, when we are FINALLY through with the “real world” for the day, we just want some goddamn compassion. We just want the people we live with to place value on our needs, comfort levels, and limitations. We want the people who say they love us to demonstrate that love through doing whatever small thing they can do to ensure that when we’re in the comfort of our own homes, we can actually be comfortable instead of having to continue carrying around that weight that we’ve been forced to hold up all. day. long.
The thing I find so unfathomable, so confusing, is how so-called feminists can talk endlessly about the emotional labor that women do and the extra mental load that women carry (especially women in
heterosexual situations) and yet they can’t seem to understand how fucking exhausting it is for us disabled people to carry the mental load of managing our conditions every moment of every day – to say nothing of the mental, physical, and emotional toll that our symptoms cause on their own. It’s literally the same concept, and yet I can’t tell you how many blank, confused, or even judgemental stares I’ve gotten from abled feminists when I try to explain why I’m so tired and unable to keep up with them.
This is why i straight up REFUSE to watch movies except on my own, very specific terms. Like, dude, the general world is already too much for my autistic empath ass, i will not be subjecting myself to yet more cognitive heavy lifting for something that’s supposed to be enjoyable and relaxing.
A Relatable Autism Feel™
which piece of my meal do I eat last. Which Flavour will be the Chosen One that will Erase all others and Prevail.
after experiencing “feelings” i have decided that this just isn’t for me but thank you for the opportunity
You need to learn better communication skills. People would like you more.
I don’t think that’s true.
You communicated that perfectly and I don’t like you so far.
When we say “executive dysfunction”, I think it’s important to acknowledge to ourselves (and make clear to those who don’t struggle with it) that we’re talking about a basket of different struggles that we’re labeling with one name for convenience. One person’s executive dysfunction may not look like another person’s, even though the outcome (not being able to complete a task) may look similar from the outside.
Some people with executive dysfunction struggle to break down tasks into their component steps. Others struggle to connect cause and effect (’if I do this, this other thing will likely happen’), which makes daily life a confusing and sometimes terrifying black box. Still others can break down steps and parse out cause and effect, but they can’t start the first task (hello anxiety my old friend), or they get partway through and get distracted by a tangent or forget what the next step was because there were more than three (ah add i never miss you because you never leave), or they run out of energy before they can finish (tons of situations can cause this, both physical and mental). Sometimes people have a poor sense of how long it will take to do tasks, never seeming to budget enough because they don’t track time internally well. Others can only complete a task when they have sufficient adrenaline to spike their brain into focus, which usually means working in panic mode, which associates those tasks with Bad Feelings and further reinforces any anxiety the person may have.
And this isn’t just a few people. This is large-scale, across many groups struggling with different issues, from heavy metal poisoning to autism to add to chronic illness to anxiety to schizophrenia to mood disorders to traumatic brain injury, and more.
What we need, as a society, is to build better structures for supporting those with executive dysfunction, structures that acknowledge the multiple different types and causes. Because we cannot keep throwing the baby out with the bathwater here. We throw away incredible human potential that could help all of us because our society is set up to require a single skill which a large percentage of our teen and adult society doesn’t have and can’t easily develop (or they would have, trust me), or previously had by has temporarily lost due to injury or illness.
Instead of treating executive function as something that some people have developed and others haven’t, like artistic skills or a talent in maths or the ability to visualize systems or managing people, we treat it as a default that some people haven’t mastered because they’re [insert wrongheaded judgment here].
What if we treated the visual arts that way? If you can’t draw skillfully, you must be deficient in some way. How can you not draw? Anyone can draw. You start as a young child with crayons, what do you mean you can’t do this basic task?
Never mind that it’s a really complex skill by the time you’re expected to do the adult version, rather than the crayon version. Never mind that not everyone has been able to devote energy to developing that skill, and never mind that not everyone can visualize what they want to produce or has the hand-eye coordination necessary to accomplish it.
Now, I have friends who say that anyone can draw, and maybe they’re right on some level. But it’s hard to deny that it helps that drawing is optional. That you can opt out and no one thinks any less of you as a person. Executive function is treated as non-optional, and to some extent, since it’s involved in feeding and clothing and cleaning and educating oneself, it’s not entirely optional. But we make all of those tasks much harder by assuming by default that everyone can do them to an equal degree, and that no one needs or should need help.
If we built a society where it was expected that I might need timed reminders to eat, I would probably remember to do it more often. I certainly did as a child, when the adults around me were responsible for that task. Now that I’m an adult, the assumption is that I somehow magically developed a better internal barometer for hunger. Many people do. But I and many others did not. Recognizing that there are many of us who need help and treating that need as normal would go a long way toward building support into the basic fabric of our society.
But then, I guess that’s been the cry of disability advocates for decades; just assume this is a thing people need help with and build the entire structure with that assumption in mind.
executive dysfunction
I can never tell whether I have it or I’m just lazy (via spurisani)*waves* I don’t want to be an awkward turtle, but I noticed these tags and I kind of want to address this, since I stumble over this type of comment all the time online and off.
NGL I cry about this a lot more than people think.
This stuff is why I have a knee-jerk *snarl* response at the slightest hint of people starting with “well with Gifted kids we just need to focus on valuing effort -”
You will not get further than this around me. An absolutely flat “No.” will happen here. Swearing may ensue. A fast catch-up on the prevalence of executive function disorders, anxiety and depression in Gifted kids will almost certainly follow. Probably mixed with swearing.
When I was a pre-teen, I couldn’t practice piano.
It’s a weird statement, isn’t it? But in retrospect, it’s true. I internalized this as “I lack discipline”, and “I’m lazy”, and even outright “I’m just a horrible entitled Gifted person skating by on my Giftedness, which is even worse.”
What actually was going on is that sitting down to practice piano gave me an overwhelming anxiety attack. I didn’t know that, because like most people I didn’t realize that “anxiety” in a clinical sense doesn’t necessarily manifest as what we parse as “fear”-type behaviour. It also manifests as intense distraction, as irritability, as impatience, as anger, etc.
So experientially, I wanted to practice. I did!
But first of all I would literally forget until it wasn’t possible anymore. This is my anxiety’s WORST TRICK, and I hate it so much: it will simply misplace information about tasks that scare me and only allow me to remember after it is no longer possible to perform this task. (It is currently playing this game with making a psychiatrist appointment).
Additionally, if I did manage to force myself to sit down at the piano, I immediately became unable to focus at all. My memory totally fell apart. Every single thought became of getting away from the piano, and it felt like this was the worst, most unpleasant task in the universe. Every slip of the fingers made me feel like I was garbage. Etc, etc, etc.
So getting to the piano was this unbelievable agonizing struggle but? It was all invisible. All the effort, all the misery, was inside my head. Without diagnosis (and this being the 90s, even if I’d had one, likely without understanding) all that could be seen was a ridiculous aversion to just doing fifteen minutes of practice! Why wouldn’t I just make the effort?
You have no idea what effort looks like from the outside unless and until you know the other person. And what’s going on with them.
The ten minutes spent fighting inside your own head with the anxiety that’s stopping you from Doing The Thing? Is part of the effort you expend on it.
I can’t look at a word without reading it
Have you ever try to study from a textbook before? Because let me tell you I can stare at a page full of words and not read a single one.
i have this problem so bad that sometimes when i’m out walking or something a random word just APPEARS IN MY MIND and then i wind up spending like five minutes trying to find the car bumper or store window or whatever that i passed that had the word on it, because i read the word WITHOUT EVEN PROCESSING THAT I SAW IT.
You might struggle with auditory processing if…
– Your catchphrase is “what?”
– You ask someone to repeat their question then finish processing and respond halfway through they’re finished repeating it.
– You somewhat processed what someone said but your brain won’t take it.
– You mishear what people say wildly wrong. Like, wildly wrong. Then you process it and it makes wayyyy more sense than whatever you thought someone originally said.
– “Wait, what?”
– Default face is a perplexed, confused look.
– You have to deal with rude people who refuse to repeat themselves and act exasperated at the suggestion, than proceed to get angry when you won’t respond to them and/or remember what they just said.
– You can hear a car door open down the street but you can’t hear someone talking to you in the same room.
– Talking is weird.
– You’re constantly seen as a bad listener (which, maybe isn’t that far from the truth- but they assume you’re not trying), unfocused (which I tend to be, but it’s unrelated), and so on. Nobody stops to consider that maybe you have processing issues.
– You were tested for hearing issues as a kid because you didn’t respond to people or talk much, but every test came back negative and your parents were told you have perfect hearing.
– The idea of talking to two people at once is terrifying beyond imagining.
– Responding to something someone said ages ago, even with a different conversation still going, the topic has moved on, and everyone forgot about it.
– “Huh?!”
Autism Type #322
Scrambled Autism